About

Mother, wife, and food blogger (my regular food blog can be found at http://www.recipesforsustenance.wordpress.com). I hope you find this blog useful.

I was previously diagnosed with thyroid disease (hypothyroidism) and I did fairly well on synthetic T4 meds for many years. About two years after the birth of my second son, I just wasn’t feeling so great. For a year and a half, I tried to get my endocrinologist to help me to figure out was was going on. He repeatedly dismissed my symptoms and refused to up my meds because my TSH levels were “in normal range”. The last time I saw him, he actually shrugged his shoulders and told me there was nothing he could do (after suggesting I take anti-depressants). I never went back.

I joined some thyroid groups on Facebook and started reading every thing I could.

I was having severe panic attacks (not normal for me) and ended up getting an appointment with a new family doctor around the corner from my neighborhood. After checking my heart and doing a complete physical, she agreed to help me figure out what was going on with my thyroid. She admittedly didn’t know that much about thyroid issues, but she listened to me. She upped my Synthroid and the panic attacks stopped. I started to feel a little better. She ordered more thyroid tests beyond TSH. Nothing was obviously wrong. My numbers were not terrible. I didn’t even have elevated thyroid antibodies that would suggest Hashimoto’s. After I had seen her several times over the course of 6 months, I asked for an ultrasound of my thyroid (I had never had one) and a 1.2 x 1 cm solid nodule with calcification was found. She sent me for a biopsy. A week and a half later, the results of a biopsy on the nodule came back “consistent with carcinoma.” I had never considered thyroid cancer. I knew something was wrong with my thyroid, I just didn’t think it was trying to kill me.

I had a total thyroidectomy in January of 2014. The follicular variant of Papillary Thyroid Cancer was found on one lobe and a classical Papillary Thyroid Microcarcinoma was found on the other lobe. All 4 lymph nodes that had been removed came back negative for malignancy. Because of my age and the multifocal aspect of my cancer, I did Radioactive Iodine (RAI) ablation in March of 2014. A whole body scan in March of 2015 was clear (YAY!).

What is your story?

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4 Comments (+add yours?)

  1. Don B
    Jun 05, 2017 @ 12:00:06

    I was taken aback by your reference to use of kosher’ salt in recipes … a mistake I make during one non-productive round of LID. Kosher as defined by the most often used certification agency the ‘O U’ or “circle U,” a capital ‘U’ inside a circle – (representing the Orthodox Union) DOES include sea salt, AND iodized salt that is produced in a specific process which avoids the agency’s definition of contamination by non-kosher means or ingredients. There are several agencies which certify, so check it out for yourself.

    Reply

    • recipesforsustenance
      Jun 05, 2017 @ 13:51:08

      Are you saying kosher salt contains iodine? It’s true that sea salt and iodized salt can be considered kosher, but the product that is referred to as kosher salt generally does not contain added iodine. As always, one must read labels. Morton’s Coarse Kosher Salt does not contain sea salt or added iodine and is LID-safe to the best of my knowledge. Do you think I should be more specific in my recipes?
      Thank you for your input. If you have any sources that indicate that kosher salt is not acceptable for LID, I would like to see them. I want to do LID right and I want people that use my blog as a resource to complete LID successfully. I’m sorry you had a non-productive round of LID. How do you know it was non-productive? Bloodwork? Anyway, I hope you are doing well now. : )

      Reply

      • Don B
        Jun 05, 2017 @ 19:07:26

        Thanks for being open to discuss. Like you I have tried to do it right through research, and have been amazed to learn of all the potential problems avoiding the iodine radical. There are a number of Kosher certifying organizations, and depending on which one a student looks at, their stamp on salt MAY mean it is iodine free. That said, I chose what appears to me to be the most common stamp and found that Orthodox Union search under ‘salt’ says it may or may not be free. Being the most common world wide certification group, if you choose to continue using kosher I would indicate that as cautionary * each time I used the words “kosher salt.”
        I also learned the hard way that anything containing brominated vegetable oil ( sodas like Mountain Dew or things containing dissolved citric oils) may, in the absence of iodine, act like it and combine with thy tissue. I believe (unsubstantiated, I am not a chemist) that any member of the halides (F, Cl, Br, I) may to a degree or another, act like Iodine and partially prevent the nuclear stuff from attaching. I have had three unsuccessful ablations and have another scheduled this month, 8 years worth, with multiple scans, blood work, etc. Last trip I had the Md tell me to wait 5 days before even eating salt, and this time to stay on the low iodine diet for another ten days after, until after the follow up WB nuclear scan. Oh joy 🙂

  2. Don B
    Jun 05, 2017 @ 19:22:46

    I am available at my email address if you are interested in anything beyond my complete thyroidectomy and follow up positive thyroglobulen numbers and negative WBS, CTs, radiology and PET-scans, etc.I cannot even remember names for all those. The whole body bone scan was a good one though, did not turn up any areas of cancer, but found out I had a worn out hip! That got fixed!

    Reply

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