It’s Back.

Unfortunately, it looks like my thyroid cancer is back. I was looking forward to the 6 year anniversary of my total thyroidectomy at the end of January. Now, I am facing dealing with thyroid cancer again.

My oncologist retired in December. The doctor that took on her patients did not want to keep me on, as he does not treat thyroid cancer. I spent a couple of months looking for a new doctor. I found an endocrinologist in another town not too far away. I wasn’t totally thrilled with him, but thought he’d be fine for bi-annual check ups. I saw him for the first time in September. Not long afterwards, I got a letter in the mail saying he was quitting with no future plans. He saw me one last time to make sure I had a prescription for my Levoxyl and referred me to an endocrinologist in Columbia.

The reason I was seeing an oncologist instead of an endocrinologist was because I had a horrible experience with one of the few endocrinologists here. He told me that nothing was wrong with me, I needed to stay off the internet, I needed to be on antidepressants, and there was nothing he could do for me. I was his patient for 2 1/2 years (I was hypothyroid for years before the cancer diagnosis) and during that time he never once physically examined my neck and only ran blood tests for TSH. Imagine my dismay when I found out I had been referred to his office. I didn’t respond to his office’s request to schedule a consultation for a couple of weeks. I started looking for a doctor in Charleston or Rock Hill. It would be hard to make a 2 hour trek for appointments, but I would make it work if I had to. After thinking about it for a while, I decided to call the local office and ask for another doctor. I told the woman on the phone I could absolutely not be the one guy’s patient again and asked her to pair me with the doctor in the office that was best for a thyroid cancer survivor. Without hesitation, she recommended a female doctor in the office. She just so happened to have an availability the next day. I went in with low expectations and a positive attitude. The new doctor is awesome!

During the consultation, she said everything I had hoped she would say. She could not understand why I was not getting yearly sonograms since my thyroglobulin number have never been under 5. I have antibodies from having Hashimoto’s so it complicates the reliance of thryoglobulin as a tumor marker. She gave me information on natural desiccated thyroid medication, scheduled me for a sonogram at the end of June (her first availability), and sent me to the in-office lab. She called me a week later with the blood test results. She was concerned with my thyroglobulin level of 7 and wanted me to come in Friday morning at 7:30 AM for a sonogram.

I went in on Friday for the sonogram. With in a few minutes, she had found 2 nodules in my neck. One was just below my thyroid bed. She explained that it looked like it could be a fluid-filled cyst. Another nodule, deep in my neck tissue on the right side appeared to be hard and she was concerned. It measured 1.1 cm. The nodules are not in the lymph nodes. I had a total thyroidectomy and radioactive iodine ablation. Those nodules should not be there. She tells me that I will need a biopsy and then we can decide on an action plan – more radiation, surgery, or a wait-and-see approach. Surgery might not be an option because of the size and location of the nodule. She would have another endocrinologist in the office do the biopsy. His first availability is Friday, February 21st. So, I’m scheduled for a biopsy. Now I wait. I do not want to do this again. I cried all the way to work.

Luckily, I am busy and don’t have much time to dwell. I kind of know what to expect and I am not scared for my life. Still, this sucks. Hard.

4 Comments (+add yours?)

  1. Stacey
    Jan 17, 2020 @ 01:53:44

    I just came across your blog. I have to start the diet on January 27 in preparation for the Radioactive Iodine in February. I am so sorry to see that your thyroid cancer came back. I just wanted to thank you for spending the time to create all of this helpful information. Best of luck!


  2. Flora
    Feb 07, 2020 @ 01:40:33

    Hi! I am Flora from Argentina. I found your blog looking for LID recipies a couple of years ago. So sorry to hear it´s back… Best wishes for you. Be strong!


    • recipesforsustenance
      Feb 08, 2020 @ 03:46:46

      Thank you so much! I’m still waiting for the biopsy on the 21st. Time is dragging by. Fortunately, I am extremely busy at work and barely have time to breathe or think about a recurrence. I do not want to go through this again, but I will do what I have to do. I will not give up! Thank you for your kind words. ❤ I hope you are doing well.


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