I had an appointment with my oncologist last week. She was in a hurry. She didn’t say a thing about my thyroglobulin levels. We had previously discussed a whole body scan a year out from my RAI. She told me I wouldn’t have to do the low iodine diet, get the Thyrogen shot, or be isolated with a tracer dose of I-131. Ummmm, I’m pretty sure that’s not the case. Maybe she was confused with some other test. She was out the door before I could ask any questions.
As an aside, it is so important for you to learn everything you can about your body and your cancer. You have to be knowledgeable enough to be proactive in your treatment. Doctors make mistakes. They are in a hurry. Trust them, but don’t trust them. You know what I mean? It’s like my dad told me, “when it comes down to it, nobody really cares about you.” I love my dad’s candor. : ) You take care of you.
Anyway, after my doctor left, I spent time with the scheduler, who was on the phone with the Nuclear Medicine people at the hospital where I will be having my scan. I will have to do the diet. I will have to get the Thyrogen shots (Yay! I don’t have to come off my meds). There will be some kind of isolation (although I’m not sure what the requirements are yet….I’ll have to call the Nuke Med. Dept. myself). Duh.
So, I am scheduled for my first Thyrogen shot on Monday, March 16th. Second shot on Tuesday and tracer dose of I-131 on Wednesday. My scan will be Friday morning, March 20th. Of course I won’t get my results immediately. My doctor said if I haven’t heard from them in 5 business days post scan to give them a call. Ugh.
I will start LID next Wednesday (two weeks from the tracer dose of I-131). Again, I was given no instructions from my doctor. I pretty much follow the diet found on ThyCa’s website. I’m prepping some foods today to freeze. I’ll post recipes when I can.